I'm fairly sure that I have this. It's mild to moderate, and although it's never been "officially" diagnosed, the typical symptoms are there (heart murmur without cardiac structural defects, poor circulation, shortness of breath with mild exertion, lack of endurance, small/visibly "deformed" ribcage). It hasn't been something that I thought of getting treated until I put all the individual health problems together and realized that what we had attributed to familial anemia was probably because of this. I was wondering if anyone knows about the indications for treatment in women over the age of 18 (I'm thinking in terms of decreasing cardiopulmonary function with age, concerns about future pregnancy, etc) and the various procedures that are available (method, safety, recovery time, etc). Thanks.