WSJ: Opioid Crackdown has Legitimate Patients Fighting Back

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Opioid Crackdown Has Patients Struggling to Get Their Meds


Opioid Crackdown Has Patients Struggling to Get Their Meds



Patient groups and health providers are challenging limits placed on prescription opioids


Evelyn Lopez, a cancer survivor, says doctors are stopping to write opioid prescriptions out of fear that they may lose their practicing authority for opioid-related violations.


Evelyn Lopez, a cancer survivor, says doctors are stopping to write opioid prescriptions out of fear that they may lose their practicing authority for opioid-related violations. PHOTO: EVELYN LOPEZ


By Stephanie Armour

April 26, 2018 8:00 a.m. ET

13 COMMENTS

The war on opioids is making it tough for Evelyn Lopez to get narcotic pain medication.


A doctor recently stopped prescribing an opioid she had taken for years, saying it wasn’t worth possible federal scrutiny. Ms. Lopez, a 53-year-old cancer survivor, also must travel 45 minutes to pick up another opioid prescription because her doctor isn’t allowed to call a pharmacy for a refill.


“I have to jump through more and more hurdles,” said Ms. Lopez, of Hazlet, N.J., who has chronic pain from treatment for her non-Hodgkin lymphoma, which is in remission. “For people like me who depend on this medication, what they’re doing is a huge injustice.”


America is battling an opioid crisis, and the Trump administration has joined Congress and state capitals in the fight. But Ms. Lopez’s frustrations illustrate the growing number of obstacles now facing patients with legitimate needs for opioids. Patient groups and health providers are increasingly challenging the limits placed on prescription opioids in the name of combating the epidemic.


About 115 Americans die each day from opioid overdose, according to the Centers for Disease Control and Prevention, prompting almost 30 states to pass laws governing how long patients can get opioids or how strong a daily dose can be. Some require long-term users to submit to pill counts or urine tests that often aren’t covered by insurance. In the private sector, liability worries have some pharmacies refusing to stock opioids altogether, while some insurers and drug-benefit managers have said they would limit the doses.


There could be more limits to come. President Donald Trump in March pledged to reduce opioid prescriptions by a third over the next three years. Congress is weighing legislation that would limit first-time opioid prescriptions to three days.


More advocacy and doctors’ groups say the measures, while often harming legitimate patients, do little to curtail an epidemic increasingly fueled by illicit rather than prescribed opioids. For example, some evidence suggests constraints on prescriptions are driving opioid misusers to illegal fentanyl, a drug whose use is more likely to result in death, according to a review of government data published in the Journal of American Physicians and Surgeons.


Tapering

Number of prescriptions written per 100 people, annually


“The decision should be between the doctor and the patient,” said Dr. Patrice Harris, past chair of the American Medical Association. “What the AMA and physicians are seeing is that the policies on restricting opioids are having a negative effect.”


Lawmakers and addiction specialists, however, say that the limits are needed because opioids are extremely addictive, and that overprescribing helped fuel the current crisis. Studies have shown there are often more effective opioid alternatives to manage chronic pain, they say.


The rise in opioid use can be traced in part to a concern in the late 1980s that pain was being undertreated, resulting in an accompanying push for more treatment. Pharmaceutical companies began heavily marketing opioids to physicians, especially with the release of OxyContin in 1996.


Millions of patients today are addicted, even though research shows the opioids don’t work for such conditions as fibromyalgia, back pain and headache, said Andrew Kolodny, co-director of Opioid Policy Research at Brandeis University. These patients can be challenging because they don’t want to transition off opioids, doctors say. “Many of them may truly believe the opioids are helping them,” Dr. Kolodny said.


Patient advocacy groups—some of which get funding from drugmakers—say the focus on prescriptions is misplaced. “It’s political. President Trump made this mandate and doesn’t care if he knocks down people with chronic pain in the process,” said Jana Shatzer, 55, of Cedar Rapids, Iowa, who takes prescription opioids.


The American Hospital Association sent a letter to lawmakers warning against the proposed three-day limit on first-time opioid prescriptions. In April, patients held rallies in several states. In Corvallis, Ore., a group stood in a drizzle with umbrellas and placards that read “Patients, Not Addicts.” In Boise, Idaho, they displayed shoes representing patients who commit suicide because of barriers to prescription opioids.


Doctors, academics and patients denounced a proposal that would have essentially set a strict limit on opioid pain medication for Medicare beneficiaries unless authorized by a doctor, and the proposal was dropped last month.


In New Jersey, Ms. Lopez said she used to wake up every morning with extreme pain. She endured eight months of chemotherapy after her lymphoma, diagnosed in 2010, spread to her jawline, chest, back, hips and liver. She underwent a second round of treatment that included a steroid she said damaged her bones and joints.


The cancer went into remission, but she was in such pain she couldn’t sleep. She tried acupuncture, massage and other options before taking opioids. “It was at that moment I realized my life would change,” she said. “I was able to fix myself meals, wash my clothes, and better yet, take showers.”


Then-New Jersey Gov. Chris Christie signed legislation in 2017 limiting initial opioid prescriptions for acute pain to five days, among other restrictions. And in 2016, more than 30 New Jersey doctors and prescribers had their practicing authority revoked, suspended or restricted for opioid-related violations.


After a hernia surgery, Ms. Lopez said, a hospital in 2017 prescribed a liquid opioid that her husband filled. Her regular doctor flagged her for “doctor shopping,” meaning she had ostensibly sought out a physician who would write her an opioid prescription.


“He was worried he could lose his license,” she said. “I felt so violated, like I had to prove myself.”


Ms. Lopez understands the concerns about opioid addiction. “My father was a heroin addict, so I get it,” she said. “But when a pain-management doctor is too afraid to write a script, it’s crazy to me.”


Write to Stephanie Armour at [email protected]

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In The Wrath of Khan (1982), Spock says, “Logic clearly dictates that the needs of the many outweigh the needs of the few.” Captain Kirk answers, “Or the one.”Sep 12, 2013
 
In The Wrath of Khan (1982), Spock says, “Logic clearly dictates that the needs of the many outweigh the needs of the few.” Captain Kirk answers, “Or the one.”Sep 12, 2013

Question for the old timers. How did we treat chronic pain in the 1970s and 1980s?

This was before the internet, but there must have been a huge number of victims slouching towards death in unbearable, un-livable pain.

Or perhaps not?
 
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Question for the old timers. How did we treat chronic pain in the 1970s and 1980s?

This was before the internet, but there must have been a huge number of victims slouching towards death in unbearable, un-livable pain.

Or perhaps not?

Multidisciplinary Pain Rehab: PT, OT, Psych, MD all under one roof. Clinics were paid $23-$45K per patient for 3 week programs. It was old-fashioned methadone tapers, functional rehab, outpatient medically supervised day-treatment programs. And, it worked. Insurance paid "usual and customary charges."

It's impossible today except for the very wealthy:

Overview - Departments and Centers - Mayo Clinic

I would love to have a program like this, but it doesn't pencil out.
 
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I don't think there was ever a problem with
Question for the old timers. How did we treat chronic pain in the 1970s and 1980s?

This was before the internet, but there must have been a huge number of victims slouching towards death in unbearable, un-livable pain.

Or perhaps not?
Good question.

Providing chronic pain management in the "Fifth Vital Sign" Era: Historical and treatment perspectives on a modern-day medical dilemma. - PubMed - NCBI

Quick read narrative review of the historical perspective.

Anyone have numbers for prevalence of chronic pain in the 1970-1980s?
 
chronic pain always existed.

some patients managed with consuming a lot of alcohol.

others realized that chronic pain was a part of life, a part of living, and that pain was not a sign that something was wrong or needed to be stamped out or eliminated.

that's how we "treat" pain nowadays. something hurts, go see a provider and get 90 vicodins. go do PT, stretch. its not gone, and neither is the arthritis. but "I feel better, keep them going". then, 3 months later, "I need more, give me oxys (/sarcasm off), or more vicodins". 6 months later, now s/he is dependent and never getting off of the narcotics... ever...

and in the meantime, s/he has handed out "a pill or two" to cousins, sons, grandkids, the next door neighbor. guess who goes to the doctor next?

that cancer survivor is a classic example of a Legacy patient, and she will never realize that she is dependent. but that's okay, why not give everyone their fix?
 
Multidisciplinary Pain Rehab: PT, OT, Psych, MD all under one roof. Clinics were paid $23-$45K per patient for 3 week programs. It was old-fashioned methadone tapers, functional rehab, outpatient medically supervised day-treatment programs. And, it worked. Insurance paid "usual and customary charges."

It's impossible today except for the very wealthy:

Overview - Departments and Centers - Mayo Clinic

I would love to have a program like this, but it doesn't pencil out.
Was this really that common back in the day?
 
Question for the old timers. How did we treat chronic pain in the 1970s and 1980s?

This was before the internet, but there must have been a huge number of victims slouching towards death in unbearable, un-livable pain.

Or perhaps not?
in the 70's and 80's non malignant pain was sometimes treated with hydrocodone, but never with oxycodone or morphine. morphine etc was reserved for malignant pain. everything changed after Portnoy declared non malignant pain can be safely treated like malignant pain. what pissed me off was that without any proof at all everyone was telling me short acting opioids were more addictive than long acting opioids. i would go up and ask the prominent academics giving these talks to show me a study, they would sometimes turn red and tell me it has not been proven yet. but of course the admin types believed it. there was a guy from Portland that advocated morphine for FMS! he spoke to everyone where i worked! i could not $^&*ing believe it. but some of my colleagues agreed with him.
 
Multidisciplinary Pain Rehab: PT, OT, Psych, MD all under one roof. Clinics were paid $23-$45K per patient for 3 week programs. It was old-fashioned methadone tapers, functional rehab, outpatient medically supervised day-treatment programs. And, it worked. Insurance paid "usual and customary charges."

It's impossible today except for the very wealthy:

Overview - Departments and Centers - Mayo Clinic

I would love to have a program like this, but it doesn't pencil out.

So, functional restoration programs. Yes, multiple places have tried this and it has bankrupted them- I think U of K tried this and not even the large hospital systems could support it.
 
I had a med student yesterday who will be starting ER residency this year. He was asking for ER tips.

I told him to try to avoid opioids without clear, objectifiable evidence of severe pathology; Consider tramadol as an option; and finally, if you do prescribe a short course of opioids, do so as a taper, so the dose will be zero at the end.
 
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in the 70's and 80's non malignant pain was sometimes treated with hydrocodone, but never with oxycodone or morphine. morphine etc was reserved for malignant pain. everything changed after Portnoy declared non malignant pain can be safely treated like malignant pain. what pissed me off was that without any proof at all everyone was telling me short acting opioids were more addictive than long acting opioids. i would go up and ask the prominent academics giving these talks to show me a study, they would sometimes turn red and tell me it has not been proven yet. but of course the admin types believed it. there was a guy from Portland that advocated morphine for FMS! he spoke to everyone where i worked! i could not $^&*ing believe it. but some of my colleagues agreed with him.

So what was done for people not sent to multidisciplinary clinics. This is fascinating to me. OTC meds? Counseling? Home exercise programs?

Did people just tend to drive on, view pain as a part of life and something that could not be "medicalized?"

Do you think people in the 70's and 80's had a healthier, more realistic view of pain with more reasonable expectations?
 
So, functional restoration programs. Yes, multiple places have tried this and it has bankrupted them- I think U of K tried this and not even the large hospital systems could support it.

It's got to be resourced, paid, and rewarded for the kind of work it is--labor intensive, high burn-out work. Stop paying for Mu-Shoo medicine and for university professors to churn out canned meta-analyses and start paying for community-based functional restoration.
 
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The rest of the world seems to handle pain on much less Narcotics, the U.S. population needs to suck it up
 
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So what was done for people not sent to multidisciplinary clinics. This is fascinating to me. OTC meds? Counseling? Home exercise programs?

Did people just tend to drive on, view pain as a part of life and something that could not be "medicalized?"

Do you think people in the 70's and 80's had a healthier, more realistic view of pain with more reasonable expectations?
Look at it this way. Obese people put up with their diabetes, their high cholesterol in third world countries and die earlier or they lose the weight. In the USA the elevated BS is treated, the high cholesterol is treated so the obese live longer. In the third world people with chronic pain go into some corner and die, or adapt.
I have always loved this poem. Call it pain in the third world.
Charles Kingsley (1819-1875)

from The Water Babies

WHEN all the world is young, lad,
And all the trees are green ;
And every goose a swan, lad,
And every lass a queen ;
Then hey for boot and horse, lad,
And round the world away ;
Young blood must have its course, lad,
And every dog his day.

When all the world is old, lad,
And all the trees are brown ;
And all the sport is stale, lad,
And all the wheels run down ;
Creep home, and take your place there,
The spent and maimed among :
God grant you find one face there,
You loved when all was young.
 
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Look at it this way. Obese people put up with their diabetes, their high cholesterol in third world countries and die earlier or they lose the weight. In the USA the elevated BS is treated, the high cholesterol is treated so the obese live longer. In the third world people with chronic pain go into some corner and die, or adapt.
I have always loved this poem. Call it pain in the third world.
Charles Kingsley (1819-1875)

from The Water Babies

WHEN all the world is young, lad,
And all the trees are green ;
And every goose a swan, lad,
And every lass a queen ;
Then hey for boot and horse, lad,
And round the world away ;
Young blood must have its course, lad,
And every dog his day.

When all the world is old, lad,
And all the trees are brown ;
And all the sport is stale, lad,
And all the wheels run down ;
Creep home, and take your place there,
The spent and maimed among :
God grant you find one face there,
You loved when all was young.

In my 20 years on SDN, *NO ONE* has ever quoted Charles Kingsley. Ever. You are credit to humanity majors everywhere!
 
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