Ehlers Danlos and pain

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ctts

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Was wondering if anyone has any tips for managing pain in patients with Ehlers-Danlos?

You can comment in a general way... But in particular, I have a 30 year old female with EDS hypermobility type (no vascular involvement), confirmed with genetic testing. Briefly, has neck and right shoulder pain. Occasional radicular pain into right arm. MRI C-spine fairly unremarkable, negative for nerve impingement. Had right shoulder surgery for subacromial decomopression and labral tear. She is active and does non-impact exercises 3 times per week. She is not seeking opioids. Tramadol has not helped. Gabapentin 300 mg TID has not helped. On Lexapro, which helps depression/anxiety, but Cymbalta is not covered. Takes Indocin as needed for headaches. She is a minimalist, so not seeking anything drastic.

My thought is to increase gabapentin to at least 600 mg TID before declaring failure. I offered trigger point injections, which she states she would consider if pain worsens.

In the meantime, as I was doing some research online, I came across the suggestion of magnesium supplementation. I think it would make sens to try so I was going to suggest it to her. I am thinking Mg gluconate 500 mg 1-2 TID.

Any thoughts? Thanks!
 
PT, PT, PT. TENS. Gabapentin for mechanical pain? There is no drug to overcome CTD that is not inflammatory. Maybe low dose T as alternative medicine to help her build the muscles.
 
she needs to learn joint protection techniques to avoid progression of joint laxity. I disagree with testosterone as this is a connective tissue disease rather than muscle. NSAIDS should help. Opioids may be indicated if needed to improve function then taper off.
 
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