2badr said:
My dad was recently diagnosed with a "hole in his gut". His liver is "almost gone" - doctor's words, not mine and he was recently admitted to the hospital for his 5th transfusion.
Is surgery the standard procedure for a leaky gut? I would like to give him some questions to ask his FP and Oncologist (he has cancer as well) on Thursday.
I'm sorry, it must be rough news for all of you. I think it would be helpful to know more about the type and extent of your father's cancer.
Having a "hole in your gut" means that he is at risk for losing massive amounts of blood. There are a number of conditions this could describe. It is often due to a deficiency of platelets.
If you are a student, I think it may be helpful to go to the doctor's appointment with your dad so you can learn more about his disease.
Is he visiting with his FP and oncologist on the same day? That sounds stressful; if they do not work in the same area of town.
A few suggestions:
-Tell him to bring all of his medications in with him, and carefully go through them with the FP to check for whether they need refills or need to be discontinued. Especially if he takes pain-killers, you never want to run out of refills.
-If he has had any recent imaging studies done [
bone scans, MRI's, brain CT's], make sure he makes a point to discuss the results of these with his oncologist (preferrably) and FP.
-Make sure the significance of any changes in his serum and urine analytes is discussed thoroughly.
-Make sure he explicitly mentions any new symptoms, painful ailments, headaches, or body weight changes which have been started.
Whether your father's condition is terminal or not, I think it is good for you to discuss the options for his end of life care. Are there people at his home (wife, relatives) who can provide hospice care if he is disabled? Does he live in a two-story home? There are also life support choices which need to be discussed with his FP.
I think these may be very difficult subjects to talk about or even think about. There are better forums than SDN for cancer support networks; in fact there are even online support networks for each type of cancer.