How to you approach the patients who never get better?

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jbomba

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Lately I've found myself feeling a little burned out and I thought about that for a little while. A big part of this is what feels like the high number of patients who simply never get better. They fall into two camps.

The first are SMI, smoking meth, even when they are med compliant and sober they're still quite bad. I encounter these people in jail or through repeated ER visits most commonly.

The other are the personality disordered, lives filled with trauma and drama, often times highly somatic, who continually want more medicine for their problems. They are either not interested in intensive therapy with a high quality therapist or they're happy to continue chatting with their supportive therapist they've had for the last 10 years.

How do you all continue to see these patients but not start to get jaded and feeling hopeless yourselves?
 
I find myself just participating with these patients. Like you I am burnt out and jaded.

The latter patient you mentioned, I always think that the reason why the are in that sick role is because they have consciously or unconsciously decided to continue it(primary or secondary gain?) or because one of us hasn't solved the diagnostic/treatment puzzle yet.
 
In my current outpatient setting I have infrequent interaction with the first (SMI/Meth/revolving ER visits) group.

For the second, I explain the personality disorder to the patient, or if there are traits (but not a full disorder) try to help them understand how those traits and behaviors perpetuate their suffering. Most importantly, I emphasize the expectation that judiciously used medications may offer some relief but will not get them better. I don't play medication carousel, changing a medication every time they argue with their significant other. I maintain them on a reasonable non-polypharmacy regimen and repeatedly counsel them about engaging in psychotherapy, behavioral activation (including getting sufficient exercise), and other healthy habits that will slowly move them toward recovery. Some actually follow through with my recommendations and either slowly move toward recovery or at least maintain safety and something akin to their own baseline of "stability." Others get fed up with me and move on to another provider, which I am very okay with. I would far rather have such patients drop out than participate in the kind of medication-focused bad care they are seeking.

I also have made peace with the limits of what we can do for such patients. Sometimes the best we can hope for is that we point people in the best direction for them, alleviate some suffering, and at least do no harm (read: polypharmacy and medicalization of all of life).
 
@Bartelby Yep.

Outpatient is slower. Enjoy the pace. You win some, you lose some, and just when you get complacent **BAM** a surprise happens and some people make some life changes. Can lead a horse to water, doesn't mean they'll drink. Repeat yourself, but not necessarily every visit. *unless substances
 
Have a patient in the second group who has always been quite dependent, but the level of entitlement is starting to show through and has become more apparent over the years. The core issues troubling this patient are essentially loneliness, a relationship breakup that happened years ago and a lack of maternal validation. There is also an underlying expectation that medication will somehow fix all of this, although we are now at the point where I am just pointing out that everything has been tried already and there is nothing new out there. While there have been a couple of major traumatic events over their life, their apparent inability to process these events is quite striking to the point where I have been thinking that they enjoy their status as a victim.

On an overall scale they are not difficult per se, in that there is no aggressive behaviour, illicit drug use or non-attendance – but they are extremely draining, continuously revisit old material and appear to almost revel in telling this to new people. Years ago they had actually complained about not getting “their hour” from the night shift nurse. Another observation arising from that time was the patient appears to either ignore or not seem to recognize signs of disengagement, and does this by introducing a new topic or concern which delays people from leaving. Interestingly I also found out that in the past they used to be part of a committee for a volunteer organization and after taking the floor would refuse to be vacate after their turn which would lead the meetings to finish hours late. When managing them as an inpatient, I have taken the unusual step of limiting nurse one to one contact time to 10-15 minutes per shift as they can otherwise monopolise their time.

In terms of risk, there is really none – they have somehow managed to secure a lot of support services up to 25-30 hours of peer support contact or therapy groups per week which I don’t believe is actually doing anything except to reinforce the patient’s dependency. However, I have no say in how this gets allocated or provided. What I have observed is that even having so many support person hours hasn’t helped their loneliness, as paid support workers are not a substitute for actual friendships.

On the entitlement side, the conversation that really made me think about this was when they complained that their siblings were not providing enough financial support to their aging mother. At the time his sibling were paying around 40k each for a live in carer. The patient’s issue was that his mother was topping up her care by about 10-20k a year. Why was this a problem? Because she was drawing from her savings which he considered his inheritance.

I recognize that I can’t do a lot for this patient, and it will take years for them to make small changes. But you take your wins where you can get them. They once wanted to try ECT, so we used that opportunity to cut back a lot of benzos and sleeping tablets.
 
Lately I've found myself feeling a little burned out and I thought about that for a little while. A big part of this is what feels like the high number of patients who simply never get better. They fall into two camps.

The first are SMI, smoking meth, even when they are med compliant and sober they're still quite bad. I encounter these people in jail or through repeated ER visits most commonly.

The other are the personality disordered, lives filled with trauma and drama, often times highly somatic, who continually want more medicine for their problems. They are either not interested in intensive therapy with a high quality therapist or they're happy to continue chatting with their supportive therapist they've had for the last 10 years.

How do you all continue to see these patients but not start to get jaded and feeling hopeless yourselves?
You'll get good responses above/below, but it's somewhat similar to the same way neurooncologists treat patient's with GBMs and trauma surgeons have operations with <10% survival rates. Heck imagine being the PCP for someone who's A1C goes up every visit despite all the counseling/medications/referrals you provide them with. They are people seeking care, someone needs to see them, and we signed up to see people with mental health disorders or concerns.

At the very least you help people for a living and get paid well. You should sleep well at night, you aren't being a parasite on society racing to pad your bottom line. I'm sure the private equity folks buying up hospitals/practices tell themselves they are helping the world, but see, you actually are.
 
Serious, chronic diseases are chronic because they can't be cured. They generally worsen over time, and may ultimately lead to death. Medicines may be able to blunt the sharp downward trajectory into a slow, prolonged decline, but not always.

As for patient non-compliance, does a cardiologist feel helpless when a CHF patient continues to smoke, drink, use cocaine, and refuses to exercise or eat healthy? We're not surgeons. We don't play god and unilaterally make decisions and yank disease from our patients' bodies.

Sure, we don't just treat disease because we can provide therapy to address psychological issues. But therapy isn't magic. We can invite the patient to explore alternatives to their disordered, drama-filled lives. But that is all. Medications +/- therapy, and what will be is up to the patient +/- fate.
 
Serious, chronic diseases are chronic because they can't be cured. They generally worsen over time, and may ultimately lead to death. Medicines may be able to blunt the sharp downward trajectory into a slow, prolonged decline, but not always.

As for patient non-compliance, does a cardiologist feel helpless when a CHF patient continues to smoke, drink, use cocaine, and refuses to exercise or eat healthy? We're not surgeons. We don't play god and unilaterally make decisions and yank disease from our patients' bodies.

Sure, we don't just treat disease because we can provide therapy to address psychological issues. But therapy isn't magic. We can invite the patient to explore alternatives to their disordered, drama-filled lives. But that is all. Medications +/- therapy, and what will be is up to the patient +/- fate.
Cannot begin to tell you how many things people do to make their outcomes dramatically worse for surgeons. They go in at age 26 thinking they can yank disease for someone's body, but boy does the perspective shift after years of the cold, hard reality of being a surgeon. Don't even get them started on people who "just want" surgery to fix a problem where the surgery has way more risks than benefits, particularly compared to making modest lifestyle changes.
 
I think the OP's perspective is a bit backwards and that's where the stress comes from. The OP appears to be conceptualizing these are inherently or intrinsically annoying or frustrating patients. Instead, I believe it's better to view them as a particularly bad match for the OP. It sounds like the OP is out of ideas for both, so it's time for them to move on. If this is in inpatient (particularly jail inpatient) or the ED, your job is not to fix the person. If you're going into inpatient or CL work thinking you're going to fix someone, you're going to be very disappointed consistently. That's not even a patient mismatch, that's a job expectation mismatch. Your job is to make sure they aren't an acute danger to themselves or other people and once they aren't, get them connected to someone who can actually address their issues. It can be very freeing to drop the whole pretense that you have some other role to play in inpatient or CL. You don't. Instead, focus on learning all the resources and how to connect people to them. If the resource isn't available or you don't know what it is, that's where your real work lies, not in this specific patient.
I don't do outpatient, so my advice probably isn't as good for the second group, but to be frank, you clearly aren't the right doctor for them and you need to make that abundantly clear. I'm not saying fire the patient, I'm saying help the patient see that they should move on. This includes setting firm boundaries around medications. Don't do the carousel. If the patient isn't benefitting from seeing you, then let them know. Wean them off the visits. If you aren't changing medications, and you shouldn't be if it's a patient you described, there's no real reason for you to keep seeing them with much frequency at all no matter how much drama and chaos is in their life.
So I guess the ultimate advice is, stop seeing both these patients. Get both groups to different clinicians as quickly and safely as you can. You aren't the right person for them. There might not even be one, but you aren't it.
 
Have to say, I have patient 2 in my practice up the wazoo. Add addiction into the equation, and that's my practice.

BUT: I also do "high quality therapy", and what you end up finding is that substantial positive change occurs at 5 year+. I'd say 50/50 or BETTER outcome when you zoom out. I think some of my patients that I made SUBSTANTIAL difference in are type 2.

So perhaps it's time for you to offer therapy?
 
Have to say, I have patient 2 in my practice up the wazoo. Add addiction into the equation, and that's my practice.

BUT: I also do "high quality therapy", and what you end up finding is that substantial positive change occurs at 5 year+. I'd say 50/50 or BETTER outcome when you zoom out. I think some of my patients that I made SUBSTANTIAL difference in are type 2.

So perhaps it's time for you to offer therapy?

A lot of those patient type 2 who OP says are not interested in intensive therapy with a high quality therapist are not interested in this sort of therapy when it has the function of telling them, "go bother someone else with this". Not that you intend that, but remember, personality-disordered. If you are the one offering the intervention, a surprisingly big chunk of the folks who stonewall getting a proper therapist will actually jump at the chance.

You do have to be trained in therapy and have an interest in doing therapy for real, though.
 
Lately I've found myself feeling a little burned out and I thought about that for a little while. A big part of this is what feels like the high number of patients who simply never get better. They fall into two camps.

The first are SMI, smoking meth, even when they are med compliant and sober they're still quite bad. I encounter these people in jail or through repeated ER visits most commonly.

The other are the personality disordered, lives filled with trauma and drama, often times highly somatic, who continually want more medicine for their problems. They are either not interested in intensive therapy with a high quality therapist or they're happy to continue chatting with their supportive therapist they've had for the last 10 years.

How do you all continue to see these patients but not start to get jaded and feeling hopeless yourselves?

As a former patient, who at one stage was considered too chronic to effectively treat, and as someone who has done some limited peer support work with eating disorder and cluster b patients, I would give the following (non medically trained) advice:

(In no particular order. Please note the term 'You' is used in a general, all encompassing manner, and does not refer to any one individual )

1) Boundaries. Have them, use them, be consistent with them. You don't need to go full blown tabula rasa, but make sure you're keeping the therapeutic relationship within the boundaries of the therapeutic frame.

2) The therapeutic relationship is arguably the most important part of treating patients with chronic presentations. Take the time to develop a good therapeutic relationship with your patient. You could be the best therapist on the planet, but without a solid therapeutic relationship underpinning that skill set you're going nowhere fast (or somewhere but very, very slowly).

3) Consistency. Whatever your patient says or does, always be consistent with how you respond.

4) It is possible to maintain boundaries, have a level of clinical detachment and still make a patient feel as if they are being seen and heard in an empathetic manner. Be empathetic, but don't allow yourself to get sucked into drama.

5) Make sure to regularly check your own counter transference when it comes to treating/dealing with chronic patients.

6) Don't be afraid to recognise and accept both your patients, as well as your own limitations. With patients that might mean recognising and accepting where they are at this point in time, and being prepared to work on what you can work on (harm minimisation, for example) rather than feeling defeated because you're 'failing' to get them past a certain point. With yourself that might mean knowing when a patient is not a good fit, when your skill set is not right for the task at hand, when a patient needs more help than you can give, when to transfer a patient, and so on.

7) It is not the patient's responsibility to get better so that you can feel good about yourself. Don't fall into the trap of trying to go the hero/saviour complex route.

8) Understand, and learn to accept that you can't save us all. By the same token also recognise, and celebrate, that sometimes chronic patients can end up surprising you by doing such unheard of things like actually recovering. 🙂
 
I think the OP's perspective is a bit backwards and that's where the stress comes from. The OP appears to be conceptualizing these are inherently or intrinsically annoying or frustrating patients. Instead, I believe it's better to view them as a particularly bad match for the OP. It sounds like the OP is out of ideas for both, so it's time for them to move on. If this is in inpatient (particularly jail inpatient) or the ED, your job is not to fix the person. If you're going into inpatient or CL work thinking you're going to fix someone, you're going to be very disappointed consistently. That's not even a patient mismatch, that's a job expectation mismatch. Your job is to make sure they aren't an acute danger to themselves or other people and once they aren't, get them connected to someone who can actually address their issues. It can be very freeing to drop the whole pretense that you have some other role to play in inpatient or CL. You don't. Instead, focus on learning all the resources and how to connect people to them. If the resource isn't available or you don't know what it is, that's where your real work lies, not in this specific patient.
I don't do outpatient, so my advice probably isn't as good for the second group, but to be frank, you clearly aren't the right doctor for them and you need to make that abundantly clear. I'm not saying fire the patient, I'm saying help the patient see that they should move on. This includes setting firm boundaries around medications. Don't do the carousel. If the patient isn't benefitting from seeing you, then let them know. Wean them off the visits. If you aren't changing medications, and you shouldn't be if it's a patient you described, there's no real reason for you to keep seeing them with much frequency at all no matter how much drama and chaos is in their life.
So I guess the ultimate advice is, stop seeing both these patients. Get both groups to different clinicians as quickly and safely as you can. You aren't the right person for them. There might not even be one, but you aren't it.

I agree a lot with this.

I am a rheumatologist, so I’m not coming from exactly the same angle here - but there is a lot of overlap, because we also see a lot of these types of personality disordered patients with nebulous symptoms who expect medication to magically make everything better (and if one medication doesn’t get you there, maybe 2 or 3 will!) Plus, if you’re not careful, the PCPs will flood you with bone on bone OA patients, chronic back pain patients, etc which really don’t belong in a rheumatology clinic to begin with. We also seem to draw in a lot of patients with…difficult personalities who have strange expectations, like the kind of patient who shows up one or two times for initial visits, starts medication, mysteriously disappears for 11 months, and then reappears and tries to rip you a new one because they don’t feel better and the meds aren’t working (where the hell have you been for the last year?)

I trained at a rheumatology fellowship where there was a lot of pressure to make every single patient satisfied, and to have a solution for every problem for every patient. And thus early in my career, I burned a lot of time going through every single crazy somatic symptom these patients have, and prescribing medication for it. I also absorbed a lot of nonsense from patients with rotten personalities, and turned it inward and assumed that it was some sort of failure on my part that the pt felt this way. This had a lot of negative consequences. First, it made me run way behind schedule wise, and i caught a lot of flack from admin at my first (otherwise crappy) job over it. Second, it led to me prescribing a fair amount of gabapentin, duloxetine, etc…and in the long run, I don’t think these meds really helped these particular patients and their complaints much. Third, it extended wait times in the queue for new sick rheumatology patients who actually DID need to be seen quickly. Fourth, it was exhausting, mentally and even spiritually. Listening to people just bitch and bitch at you endlessly about nebulous problems that probably don’t even have a solution (or at least not one that can be found from a script pad) will really wear you down inside and out, and contribute to burnout.

Around 5 years in, it clicked. I’m not the doctor for all rheumatology patients - and I don’t want to be. I’m trained as an “inflammation doctor”, not a sports med doc or orthopedist (and certainly not as a psychiatrist or therapist). I started screening new patients much more closely. I made it clear to patients that I practiced rheumatology, not any of these other specialties - and I became much more comfortable doing a workup, ruling out anything rheumatologic, and sending the pt back to their PCP. I didn’t try to hang on to people with nebulous complaints - some of whom I had initially placed on potentially toxic DMARDs that they didn’t need, mostly because they were persistent and some of their symptoms vaguely overlapped with inflammatory arthritis.

I became comfortable thinking “I don’t care if this patient moves on”, which is huge. I work in an area where rheumatology referral volume is plentiful. I don’t need to keep all these patients. In the beginning, I used to feel really discouraged if one of these “nebulous symptoms” patients (or just a pt with a horrible, toxic personality) moved on; then, I felt ok about it. Now I actually consider it a blessing of sorts. I don’t need or want these patients. I don’t want to be arguing with new patients who show up begging for Percocet refills, or whatever. I have clear “bright line” boundaries, and I enforce them. I don’t spend long periods of time indulging patients’ often absurd fantasies of what may be wrong with them. I’m happy to spend an hour with a really sick lupus patient, but I won’t spend an hour with someone with fibro any longer. I make it clear in my waiting room and on intake sheets what I do and don’t do, and what I will and will not prescribe. And I have openly stated to some people that they perhaps would do better finding a second opinion/new rheumatologist. It has made my days in clinic much easier and more enjoyable.
 
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*And knowing that a Rheumatologist had done their labs etc and declared 'we have no rheum answer' for these symptoms is still helpful. It helps to open up the discussion on somatic psych overlap.

That too.

Too many rheumatologists seem to be afraid to rule one way or another on that question. It doesn’t help anyone else. Granted, there are plenty of times where things are vague and may evolve - but I make that clear in the note. And if it really looks like nothing whatsoever is going on, I’m gonna state that.
 
One of the hardest things about getting stuck in an 'illness state' so to speak is that it becomes your personality. Shedding that role is hard because you have to venture into something unknown. Having a good therapist who's actually going to challenge a patient is really helpful but the fact is that there are too many supportive therapists out there who just seem to validate things patients say instead of making them do the hard work.

Have a patient in the second group who has always been quite dependent, but the level of entitlement is starting to show through and has become more apparent over the years. The core issues troubling this patient are essentially loneliness, a relationship breakup that happened years ago and a lack of maternal validation. There is also an underlying expectation that medication will somehow fix all of this, although we are now at the point where I am just pointing out that everything has been tried already and there is nothing new out there. While there have been a couple of major traumatic events over their life, their apparent inability to process these events is quite striking to the point where I have been thinking that they enjoy their status as a victim.

On an overall scale they are not difficult per se, in that there is no aggressive behaviour, illicit drug use or non-attendance – but they are extremely draining, continuously revisit old material and appear to almost revel in telling this to new people. Years ago they had actually complained about not getting “their hour” from the night shift nurse. Another observation arising from that time was the patient appears to either ignore or not seem to recognize signs of disengagement, and does this by introducing a new topic or concern which delays people from leaving. Interestingly I also found out that in the past they used to be part of a committee for a volunteer organization and after taking the floor would refuse to be vacate after their turn which would lead the meetings to finish hours late. When managing them as an inpatient, I have taken the unusual step of limiting nurse one to one contact time to 10-15 minutes per shift as they can otherwise monopolise their time.

In terms of risk, there is really none – they have somehow managed to secure a lot of support services up to 25-30 hours of peer support contact or therapy groups per week which I don’t believe is actually doing anything except to reinforce the patient’s dependency. However, I have no say in how this gets allocated or provided. What I have observed is that even having so many support person hours hasn’t helped their loneliness, as paid support workers are not a substitute for actual friendships.

On the entitlement side, the conversation that really made me think about this was when they complained that their siblings were not providing enough financial support to their aging mother. At the time his sibling were paying around 40k each for a live in carer. The patient’s issue was that his mother was topping up her care by about 10-20k a year. Why was this a problem? Because she was drawing from her savings which he considered his inheritance.

I recognize that I can’t do a lot for this patient, and it will take years for them to make small changes. But you take your wins where you can get them. They once wanted to try ECT, so we used that opportunity to cut back a lot of benzos and sleeping tablets.

I can't believe that I'm about to say this... but this sounds like the kind of patient who would benefit from having a good analyst...
 
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I honor their request to switch antidepressants, because if anything, it allows them to "see" once they have gone through the gauntlet of medicaitons. Then i state "Ok, so you have done all of these medications. Is there a possibility that medication may not be the answer you're looking for?". Ultimately i tell them sure, if you want to keep going through medications we can, but if something hasnt worked 8 times whats the chance it will work on the 9th attempt? For some people, that makes them start to think.

I also give them a disclaimer that pills do not create change, people do. Pills only serve as a catalyst for change sometimes
 
I honor their request to switch antidepressants, because if anything, it allows them to "see" once they have gone through the gauntlet of medicaitons. Then i state "Ok, so you have done all of these medications. Is there a possibility that medication may not be the answer you're looking for?". Ultimately i tell them sure, if you want to keep going through medications we can, but if something hasnt worked 8 times whats the chance it will work on the 9th attempt? For some people, that makes them start to think.

I also give them a disclaimer that pills do not create change, people do. Pills only serve as a catalyst for change sometimes

There's always something else though...TMS...Ketamine...etc etc etc
 
Meet the patient where they are at and have a vision for where they need to go and then begin applying gradual pressure within the context of the therapeutic relationship. Titrate the pressure appropriately and progress can be made. Practice neutrality during this process and detach yourself from the outcome. Patient will either improve or need higher levels of intervention in some way. Nothing is ever static, they are either getting worse or they are getting better. I am either helping or harming. The trick is to realize that doing less is often helping more. Just some morning reflections off the top of my head. 😁
 
1) In my simplified view: have you ever just asked them, "You know, I really want you to help you get better. But I don't know how I am doing helping you, or even if I am helping you. You seem to come back, so maybe there is something that's benefitting you that I'm not recognizing. Am I helping you? What benefit do you get from seeing me?". Maybe they see something you don't. Maybe they don’t. Maybe that opens the door to some discussion of treatment options and treatment goals.

2) “The art of medicine consists of amusing the patient while nature cures the disease.” -Voltaire


 
I honor their request to switch antidepressants, because if anything, it allows them to "see" once they have gone through the gauntlet of medicaitons. Then i state "Ok, so you have done all of these medications. Is there a possibility that medication may not be the answer you're looking for?". Ultimately i tell them sure, if you want to keep going through medications we can, but if something hasnt worked 8 times whats the chance it will work on the 9th attempt? For some people, that makes them start to think.

I also give them a disclaimer that pills do not create change, people do. Pills only serve as a catalyst for change sometimes
Is it these patients that make you annoyed?
 
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