Hello all. I am new to the forum. I actually saw this post and wanted to be able to respond, so I signed up. I know I am a little late to the party, but your discussion piqued my interest. FYI: I am neither a doctor, nor am I a medical student. I am simply a 30 year old female suffering from Fibromyalgia and I thought perhaps you could use a patients point of view.
I am currently seeing a pain management doctor every few months. When I went to him at the advice of my rheumatologist, he told me about Nucynta and asked if I would be opposed to trying it. I had no qualms about it. If he felt there was a good chance it would work, I was all in. However, I of course went home and researched the hell out of it before I even filled the prescription. I need to know what I am putting in my body and how it works; or should work. Nucynta appealed to me because of the lesser side effects of other opiate agonists. While I was in serious need of pain relief; narcotics still made me a little nervous.
As far as I am concerned, between the Cymbalta and the Nucynta, I have my life somewhat back. I only take the Nucynta when I have an attack; as they do still have some side effects. I love the fact that they do not impair me like most of the other medications did; and it does a perfectly good job of keeping my pain under control when my FM rears its ugly, inconvenient head. That is a HUGE plus for me because I have a job and a new husband and I NEED to be able to function normally. The last few weeks have been difficult for me and I have used them more than I normally do. I have 50mg pills and can take 2 at a time if the pain is that bad; though I cannot take more than 4 in one day.
The Tramadol did not work for me AT ALL, but the Nucynta is like a gift from God. I can tell you that with the increase over the last few weeks, my only real complaint is constipation. I have been taking it for approximately 8 or 9 months as needed, and I see no decrease in its effects. I have read much about it and other patient's opinions and experiences: they are varied. A friend of mine who also suffers from FM tried it as well. She did not like it at all. When I asked her why, she proceeded to tell me that to her, "it felt like a DIRTY high", though I was not 100% sure as to what she meant at the time. My response to her was, "I'm not taking it to get high. I am taking it to make my pain go away": and that exactly what it does for me. She has since started taking percocet, and for her, I guess it works. My fear was that since there is no cure for FM, I would exhaust all my options because of tolerance and wind up a 50 year old drug addict. Not having to continually increase the dosage is nice, and I do not get "high": I can still function. My thought processes DO noticeably slow down when I take 2; but not nearly as much as it does when I was on other medications.
I know it is expensive, but for myself, it is 150% worth it. My doctor has discount cards so I often don't pay more than $20 for it. Any prescription can be abused; but I am in agreement with those who posted prior to me: its the individual who causes the problem, not the medication. I noticed that people who shy away from trying it, often seem to be the ones doing it for the "high". I don't know if all this helped in any way, but thats my little story about Nucynta; and now its time for bed. Good night all!