What to do in this patient scenario?

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waterbottle10

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Not super familiar with the nuances of the law but recently had a case of pt with AMS, with son who is the HCP, and POA who is only reachable by phone. Son is demanding and wants to be contacted by phone before introducing any new medicine in her. And refused to discuss DNR/DNI and said in emergencies, we need to call him first and speak to him before doing things.

Since son is HCP and POA, and mother lacks full capacity due to AMS, are the patients providers required to follow the sons demands? Calling every time you want to give a new medication is a time consuming task, + in case of emergencies, are providers supposed to just watch her dying body as we call the son? What if doesn't pick up..?
 
Not super familiar with the nuances of the law but recently had a case of pt with AMS, with son who is the HCP, and POA who is only reachable by phone. Son is demanding and wants to be contacted by phone before introducing any new medicine in her. And refused to discuss DNR/DNI and said in emergencies, we need to call him first and speak to him before doing things.

Since son is HCP and POA, and mother lacks full capacity due to AMS, are the patients providers required to follow the sons demands? Calling every time you want to give a new medication is a time consuming task, + in case of emergencies, are providers supposed to just watch her dying body as we call the son? What if doesn't pick up..?

She's a full code until he says different. Done. That is the easy part. There is no real halfway point. You simply need to let him know that if she's not a DNR, then she is a full code and you will do whatever is done in a full code situation.

As far as other non-emergency medication changes go, yes, you should make every effort to contact him with any changes. If you cannot get a hold of him and think a medicine is necessary, then give.

He's probably not an unreasonable person. Though sometimes people are. It's probably worth your time to set up an family conference while things when things are stable and hammer out a better overall plan. Avoiding him will only make things worse. I promise.
 
She's a full code until he says different. Done. That is the easy part. There is no real halfway point. You simply need to let him know that if she's not a DNR, then she is a full code and you will do whatever is done in a full code situation.

As far as other non-emergency medication changes go, yes, you should make every effort to contact him with any changes. If you cannot get a hold of him and think a medicine is necessary, then give.

He's probably not an unreasonable person. Though sometimes people are. It's probably worth your time to set up an family conference while things when things are stable and hammer out a better overall plan. Avoiding him will only make things worse. I promise.

Are there any laws that say there is no halfway point? What would my defense be when his lawyer in court asks me why I resuscitated before calling him when he who has POA specifically said do not do anything unless I speak to him over the phone in emergencies?
 
Are there any laws that say there is no halfway point? What would my defense be when his lawyer in court asks me why I resuscitated before calling him when he who has POA specifically said do not do anything unless I speak to him over the phone in emergencies?
No, there's no halfway point. He said she's full code, which means that, in an emergency, you do what needs to be done and you contact him as soon as possible. He needs to understand that the only way around this is if he is at the bedside 24/7.

And having this discussion in a non-confrontational way usually mellows people like that out.
 
The requirement for consent can be waived in the case of a life-threatening emergency. Your hospital should have a policy on this. I do not know anyone who seeks consent before running a code on a full code patient. I think that since he has refused DNR/DNI then the implication is that you resuscitate in the case of an emergency and call him after. You would be in more hot water if you delayed emergency care and she was injured or died.

If at any point you feel his demands for his mother are unreasonable, then you can seek advice from your hospital's ethics committee.
 
Are there any laws that say there is no halfway point? What would my defense be when his lawyer in court asks me why I resuscitated before calling him when he who has POA specifically said do not do anything unless I speak to him over the phone in emergencies?

If you try and save someone in a case where you've NOT been told explicitly not to, you'll never be fielding questions from a lawyer in court about it. There isn't some kind of law. It's just not malpractice as it's the standard of care and founded on current best practice medical ethics.

Have the family meeting.
 
in an emergency where life or limb is at stake you don't have to seek consent to treat unless it has been documented ahead of time from patient or POA to refuse certain things

contact ethics

I had quite a bit of ethics education built into our curriculum, most docs do it all wrong

if the patient has advanced directives, those take precedence over anything the POA says!
doesn't just have to be a form, and there's some judgement that goes into if expressed wishes still apply
say during a PCP visit only 2 months ago, while healthy and of sound mind, gramma says she wants to be DNR/DNI and no feeding tube
has a bad MI & stroke, and gorked, now son is healthcare POA and wants feeding tube
most of the time I see the docs cave to to the family wishes, and they are lucky that gramma usually is so gorked she can never wake up and sue them
the right thing here in this case is not to do what the son wants but what gramma documented, however, there is more legal risk from the son than gramma here, although you would win

keep in mind too that family wishes do NOT override the judgement of the physician in the following:
palliation/reduction of suffering
medical futility
cases where it is clear they are not acting in accordance with what the patient would want

that means if she's AMS but is crying in pain, and the family for whatever hippy reasons doesn't want you to give her morphine, they can suck it

theoretically if she's full code but you deemed it medically futile you wouldn't have to code her, but no one plays that way because of lawsuits
even ethics will back down on that one even though technically the law is behind you

last example, say patient was Jehovah's witness, and so was family, but this admit had a GI bleed and said they renounced all that and wanted a blood transfusion, and even got a few, and that if they needed more they wanted more
now they're gorked and the POA wants to say no
in this case, they can suck it

I come off here like I don't care about what families want and I totally do, but my responsibility is to the patient first and I'm so sick of seeing patients suffer needlessly when the law and ethics are behind us doing what THEY want, yet we condemn them to suffer in all sorts of ways while the family who doesn't have to go through it dictates the torture because of whatever they have mixed up in their heads

too many families aren't able to act as an actual proxy for the *patient's* wishes and think it means they just get to make whatever decisions they want
also contact ethics, it's tough but POAs can be removed even
the whole reason families get to be POA is the idea they *know* the patient better than the docs and can be a voice for what the patient wants
there is usually law in whatever state dictating who is POA, like it often goes to the spouse first, then eldest child, then parent
say gramma has had a live in boyfriend of 4 years
and her son, has been in estranged for 20 and lives across the country, but now he flies in
there are precedents for going before a judge and changing the POA, a lot of times it's the medical team helping to make that happen

keep in mind, there are medical decisions that ONLY lie in the hands of the physician
e.g. whether or not gallbladder removal is indicated (patients don't just get to have them out because they "feel" like it)

sometimes docs give the families more choice than is medically, ethically, or legally warranted (like instances of futility)
not every healthcare choice is actually appropriate to put before the POA
there are things you need to consult with them on, and things you don't!

I could be wrong on some of this, it's been a while since we had "ethics" rounds, can't hurt you to take my post and run the points by your ethics team

#ethicsknowledgeispowertodorightbythe*patient*
 
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in an emergency where life or limb is at stake you don't have to seek consent to treat unless it has been documented ahead of time from patient or POA to refuse certain things

contact ethics

I had quite a bit of ethics education built into our curriculum, most docs do it all wrong

if the patient has advanced directives, those take precedence over anything the POA says!
doesn't just have to be a form, and there's some judgement that goes into if expressed wishes still apply
say during a PCP visit only 2 months ago, while healthy and of sound mind, gramma says she wants to be DNR/DNI and no feeding tube
has a bad MI & stroke, and gorked, now son is healthcare POA and wants feeding tube
most of the time I see the docs cave to to the family wishes, and they are lucky that gramma usually is so gorked she can never wake up and sue them
the right thing here in this case is not to do what the son wants but what gramma documented, however, there is more legal risk from the son than gramma here, although you would win

keep in mind too that family wishes do NOT override the judgement of the physician in the following:
palliation/reduction of suffering
medical futility
cases where it is clear they are not acting in accordance with what the patient would want

that means if she's AMS but is crying in pain, and the family for whatever hippy reasons doesn't want you to give her morphine, they can suck it

theoretically if she's full code but you deemed it medically futile you wouldn't have to code her, but no one plays that way because of lawsuits
even ethics will back down on that one even though technically the law is behind you

last example, say patient was Jehovah's witness, and so was family, but this admit had a GI bleed and said they renounced all that and wanted a blood transfusion, and even got a few, and that if they needed more they wanted more
now they're gorked and the POA wants to say no
in this case, they can suck it

I come off here like I don't care about what families want and I totally do, but my responsibility is to the patient first and I'm so sick of seeing patients suffer needlessly when the law and ethics are behind us doing what THEY want, yet we condemn them to suffer in all sorts of ways while the family who doesn't have to go through it dictates the torture because of whatever they have mixed up in their heads

too many families aren't able to act as an actual proxy for the *patient's* wishes and think it means they just get to make whatever decisions they want
also contact ethics, it's tough but POAs can be removed even
the whole reason families get to be POA is the idea they *know* the patient better than the docs and can be a voice for what the patient wants
there is usually law in whatever state dictating who is POA, like it often goes to the spouse first, then eldest child, then parent
say gramma has had a live in boyfriend of 4 years
and her son, has been in estranged for 20 and lives across the country, but now he flies in
there are precedents for going before a judge and changing the POA, a lot of times it's the medical team helping to make that happen

keep in mind, there are medical decisions that ONLY lie in the hands of the physician
e.g. whether or not gallbladder removal is indicated (patients don't just get to have them out because they "feel" like it)

sometimes docs give the families more choice than is medically, ethically, or legally warranted (like instances of futility)
not every healthcare choice is actually appropriate to put before the POA
there are things you need to consult with them on, and things you don't!

I could be wrong on some of this, it's been a while since we had "ethics" rounds, can't hurt you to take my post and run the points by your ethics team

#ethicsknowledgeispowertodorightbythe*patient*

this is interesting! so all those vented anarcous patients in the ICU that are kept alive for weeks to months because the proxies are'nt ready to give up, i could've just pulled out their tube?! wow, that'd sure open up much needed icu beds

Then why was that brain death case (Jahi McMath) such a big deal, and prolonged case too?
 
this is interesting! so all those vented anarcous patients in the ICU that are kept alive for weeks to months because the proxies are'nt ready to give up, i could've just pulled out their tube?! wow, that'd sure open up much needed icu beds

Then why was that brain death case (Jahi McMath) such a big deal, and prolonged case too?

Ethics in theory and in practice are different. By that I mean that doctors give much more weight to what the family says in situations when the patient is incapacitated than perhaps ethics truly require them to. The reason is simple (and cynical): the dead don't sue.

That being said, I have found that open, honest discussions with families goes a long way. Sometimes it is false hope (occasionally given by other doctors) that drives the decision. Sometimes it is the last Google search. Often it is guilt and families just need to be reminded to consider the patient's wishes over their own and told that it is ok to let people go.
 
If there is one thing in medicine I really and truly hate, it is dealing with the families of my patients. The patients themselves are almost always fine. They make their choices, and they live or die by them. But families? They suffer no consequences from their decisions. They are so ill-equipped to deal with death, dying and suffering that their brains shut off, and all they think about is that last episode of ER where someone miraculously wakes up after 2 hours of CPR and goes on to have their stage 4 pancreatic cancer miraculously cured and they go back to a normal life. *eye roll* these people are horrible. But, to answer the OP's question, in that instance, you set boundaries. You do it nicely, but you do it firmly. The family does not dictate care, and they do not substitute their judgement for mine....their job is to help me understand what the patient would want.
 
To add to the above, I think families often feel as if they are killing the patient by withdrawing care or making them DNR/DNI. It makes them very conflicted and often keep a terminal patient alive longer without utility. One of your goals should be to guide the family to make the right decision and allow their loved one to die with dignity. I have not yet seen a family that has regretted the decision to allow their loved one to die. I have seen many a family regret keeping them alive and suffering. In my experience this is usually from the physician either not being realistic enough or being too timid.
 
To add to the above, I think families often feel as if they are killing the patient by withdrawing care or making them DNR/DNI. It makes them very conflicted and often keep a terminal patient alive longer without utility. One of your goals should be to guide the family to make the right decision and allow their loved one to die with dignity. I have not yet seen a family that has regretted the decision to allow their loved one to die. I have seen many a family regret keeping them alive and suffering. In my experience this is usually from the physician either not being realistic enough or being too timid.
I will say that I completely agree with this. And that, in the inpatient setting, it gets harder and harder to do the more you "load the boat" with consultants.

ID will say "as soon as you give 2 weeks of antibiotics, this should get better".
Renal will say "we can support w/ HD/CVVHD until renal function improves".
Cards will offer some sort of catheter based approach to fix something...or at least a lasix drip.
GI will say "Hct is stable, no need to scope" or "Dropping Hct and unstable patient, will scope once stabilized".
Hem/Onc will say "await biopsy results and f/u in clinic for discussion of palliative chemotherapy, unless lymphoma or small cell lung cancer, then will start curative chemotherapy in-house".

Families will take whatever sliver of hope they get and run with it. So if you're going to call a consult to help you with this, make sure you make it clear what you're actually asking for.

And just to round out the specialties:
Endo will say "dude...c'mon...we have insulin drip order sets for a reason".
Rheum will say "WTF man?! Did you seriously call me about this s***show?".
PCCM will say "yeah, we already started comfort measures".
 
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