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tl,dr: Adult client has trauma history, family history SMI/legal trouble, presents for ASD eval. EMR is excruciatingly long, discovered many inconsistencies and omissions even of recent events in client's inital interview, further digging makes me feel something is "off" / suspect; is client highly medical seeking even when unnecessary and what to do about that? Don't trust patient report, concerned about overutilization of healthcare and corresponding lack of sufficiently addressing mental health though client states they are attending weekly therapy. Plan to ask again re: consent to speak with therapist, try to get parent on video so can confirm is not client providing the info under pretense. But what else- WWYD? And what to make of CNT testing in general?
I'll be careful not to provide too many details, but gist of it is: I do IDD/ASD evaluations, a lot of adolescents and adults. I do not have any specific training in long-term sequelae of extended adverse circumstances/repeated trauma beyond the more obvious behavioral /cog overlaps with ASD in some cases/ages
Adult client comes in, reveals history of abuse at various times into adulthood, perfunctory care at best during childhood yet client managed to do well in school, in gifted program purportedly. Client also reports strong family history of ASD though upon further digging the validity of that is suspect either due to timelines in other records not lining up, diagnoses given without any ASD specfic testing or accounting for other factors, but that's not the point. Client's medical record is eons long. lots of diagnoses, lots of meds (psychiatric and other), lots of nonspecific symptoms complaints. In the month since interview there are about 30 entries to sift through covering probably about 6 appointments, 3 specialties plus PCP, ER, UC. Reading them there is so much inconsistency in what is reported to whom, and contradictory to some of the info shared w us during interview (these were jsut a few weeks apart) Also no comments about unusual behavior, interaction, etc. in the many ROS and MSEs.
Missed our appointment because, client says, was advised to go to ER by her PCP due to fever. However, notes from another specialty appt from earlier today indicates feels "better than in months". Deep dives down med record show HUGE things that were not mentioned during the interview including recent family legal troubles, violence; medications, previous diagnoses, different number of kids reported within the same year, fairly certain client completed measures meant to be completed by parent, says is in therapy but not part of what we can access in care everywhere on our platform so idk if that's true or not and plan to get consent for that, but.... the bulk of the sketchiness did not come to light until after the initial interview and received report from another (very recent) recent evaluation.
Client has more entries in EMR than I can recall ever seeing but also at least half client's care has been at places where we don't have access to the records/don't participate in "care everywhere" record sharing so I"m only seeing a fraction.. There are many "textbook" complaints (medical conditions were referred to as a "special interest" on client's hisotry form to us) Many inconsistencies in reporting over time when sifting through medical records, so I wondered initially about memory issues, ID?. Yet very recent neuropsych testing - the only full report we were able to get - shows average to above average IQ (all domains), memory (short and long term, verbal and visual)-- but this is all based on the CNT - Computerized Neuropsych Test, with which I'm wholly unfamiliar. No other standalone cog/memory tests administered it seems. This same measure noted emotional IQ as average (how is that tested??) How much stock should i put in that testing? No measures of malingering were given but the validity scales were valid, and I'm reasoning that while you can "fake" bad, you can't "fake" good so her abilities must be at least grossly intact, right? So assuming it's reasonable to conclude her memory isn't completely disorganized, why is her reporting so full of holes, inconsistent, etc.? Even for very recent events, which came up during the other interview? self-report measure for psychopathology was moderate to severe on everything, so basically useless. FWIW there are no indicators in any of the records / ROS /MSE that sound like ASD or mention the types of bx observed in interview. Client was seen by a colleague earlier this week (also telehealth, and focused on a different family member) and they said the same.
Here's my concern. client is in poor health presumably given the very high number of appointments, ER visits etc. Client states there are several children in the home and homeschools them (ranges K-12th grade) with a variety of reported DD/LDs. Home observed via telehealth by another colleague on a different day seen to be v. chaoticin general. I don't have any concrete reason to think the kids aren't sufficiently cared for; I haven't even met any of them. It just... something feels off about the big picture and it would be nice to have some sort of secondary assurance someone is checking in. Other than listing on hx form and one clarifying question from interviewer, no mention of the kids whatsoever during the rest of the 2 hr interview, several kids were supposedly home but didn't hear a peep from them the whole time which seems highly atypical IME. There is a partner but idk how present they are or really anything about them. As far as I can tell client's bx does not seem med-seeking and not like eval with me would help in that anyway. Possible history of starting an online fundraiser in the recent past for a diagnosis that i don't see in the med hx.
do (large AMCs) typically have teams that case-manage things like this where a patient has so many different diagnoses and visits? client msut have at least 2 interactions with healthcare a week, sometimes considerably more. I thought about reaching out to insurance (medicaid) in client's area to see what they might offer to this end and see if I could get client to buy into that, but this client recently moved to our area from another area of the state and they're managed by separate MCOs... worth it to follow up with new one to see what's available for such general types of situations (non-patient-specific)?
Game plan: f/u for consent to speak with therapist, prescribing provider of psych meds (psych NP?) which was not returned at initial ask; try to get parent on telehealth / video to ask questions about early childhood (video to confirm isn't patient). nonjudgmentally ask patient about any big life happenings/stressors that there wasn't time to mention during the initial interview, see if any of this comes up. But... what else?
I'm not even concerned about the question of ASD or not honestly. More like what else is this either with or without ASD and what kind of oversight of client's medical care could be facilitated to ensure best treatment / decrease chances of overutilization or adverse interaction (patient forgot to mention a few meds)? If nothing else the frequent ER visits over what are likely not true emergencies/emergent issues is painful to see. I just imagine this client going from provider to provider and maybe moving on when someone starts to 'catch on' but then again maybe I'm just pre-judging too harshly. Regardless most people aren't going to have the time/resources to go on such a deep dive as I/we (seeing this with another psychologist due to the complexity; frankly I've already spent way too much time on this one) and I'm concerned that consequently some other providers might not think to consider whether there's a more comprehensive overlay here to be addressed beyond whatever the presenting physical / somatic complaint is.. to give the benefit of the doubt to this client I'm hypothesizing maybe hyperfocus on health, somatic sx may be related to trauma, maybe even ASD- doesn't seem likely, but I'm always willing to be surprised.... and should be better addressed by good therapy (which is supposedly happening, but not sure if it is or of the quality). So.... WWYD in addition to the above? And is the CNT assessment worth anything?
I'll be careful not to provide too many details, but gist of it is: I do IDD/ASD evaluations, a lot of adolescents and adults. I do not have any specific training in long-term sequelae of extended adverse circumstances/repeated trauma beyond the more obvious behavioral /cog overlaps with ASD in some cases/ages
Adult client comes in, reveals history of abuse at various times into adulthood, perfunctory care at best during childhood yet client managed to do well in school, in gifted program purportedly. Client also reports strong family history of ASD though upon further digging the validity of that is suspect either due to timelines in other records not lining up, diagnoses given without any ASD specfic testing or accounting for other factors, but that's not the point. Client's medical record is eons long. lots of diagnoses, lots of meds (psychiatric and other), lots of nonspecific symptoms complaints. In the month since interview there are about 30 entries to sift through covering probably about 6 appointments, 3 specialties plus PCP, ER, UC. Reading them there is so much inconsistency in what is reported to whom, and contradictory to some of the info shared w us during interview (these were jsut a few weeks apart) Also no comments about unusual behavior, interaction, etc. in the many ROS and MSEs.
Missed our appointment because, client says, was advised to go to ER by her PCP due to fever. However, notes from another specialty appt from earlier today indicates feels "better than in months". Deep dives down med record show HUGE things that were not mentioned during the interview including recent family legal troubles, violence; medications, previous diagnoses, different number of kids reported within the same year, fairly certain client completed measures meant to be completed by parent, says is in therapy but not part of what we can access in care everywhere on our platform so idk if that's true or not and plan to get consent for that, but.... the bulk of the sketchiness did not come to light until after the initial interview and received report from another (very recent) recent evaluation.
Client has more entries in EMR than I can recall ever seeing but also at least half client's care has been at places where we don't have access to the records/don't participate in "care everywhere" record sharing so I"m only seeing a fraction.. There are many "textbook" complaints (medical conditions were referred to as a "special interest" on client's hisotry form to us) Many inconsistencies in reporting over time when sifting through medical records, so I wondered initially about memory issues, ID?. Yet very recent neuropsych testing - the only full report we were able to get - shows average to above average IQ (all domains), memory (short and long term, verbal and visual)-- but this is all based on the CNT - Computerized Neuropsych Test, with which I'm wholly unfamiliar. No other standalone cog/memory tests administered it seems. This same measure noted emotional IQ as average (how is that tested??) How much stock should i put in that testing? No measures of malingering were given but the validity scales were valid, and I'm reasoning that while you can "fake" bad, you can't "fake" good so her abilities must be at least grossly intact, right? So assuming it's reasonable to conclude her memory isn't completely disorganized, why is her reporting so full of holes, inconsistent, etc.? Even for very recent events, which came up during the other interview? self-report measure for psychopathology was moderate to severe on everything, so basically useless. FWIW there are no indicators in any of the records / ROS /MSE that sound like ASD or mention the types of bx observed in interview. Client was seen by a colleague earlier this week (also telehealth, and focused on a different family member) and they said the same.
Here's my concern. client is in poor health presumably given the very high number of appointments, ER visits etc. Client states there are several children in the home and homeschools them (ranges K-12th grade) with a variety of reported DD/LDs. Home observed via telehealth by another colleague on a different day seen to be v. chaoticin general. I don't have any concrete reason to think the kids aren't sufficiently cared for; I haven't even met any of them. It just... something feels off about the big picture and it would be nice to have some sort of secondary assurance someone is checking in. Other than listing on hx form and one clarifying question from interviewer, no mention of the kids whatsoever during the rest of the 2 hr interview, several kids were supposedly home but didn't hear a peep from them the whole time which seems highly atypical IME. There is a partner but idk how present they are or really anything about them. As far as I can tell client's bx does not seem med-seeking and not like eval with me would help in that anyway. Possible history of starting an online fundraiser in the recent past for a diagnosis that i don't see in the med hx.
do (large AMCs) typically have teams that case-manage things like this where a patient has so many different diagnoses and visits? client msut have at least 2 interactions with healthcare a week, sometimes considerably more. I thought about reaching out to insurance (medicaid) in client's area to see what they might offer to this end and see if I could get client to buy into that, but this client recently moved to our area from another area of the state and they're managed by separate MCOs... worth it to follow up with new one to see what's available for such general types of situations (non-patient-specific)?
Game plan: f/u for consent to speak with therapist, prescribing provider of psych meds (psych NP?) which was not returned at initial ask; try to get parent on telehealth / video to ask questions about early childhood (video to confirm isn't patient). nonjudgmentally ask patient about any big life happenings/stressors that there wasn't time to mention during the initial interview, see if any of this comes up. But... what else?
I'm not even concerned about the question of ASD or not honestly. More like what else is this either with or without ASD and what kind of oversight of client's medical care could be facilitated to ensure best treatment / decrease chances of overutilization or adverse interaction (patient forgot to mention a few meds)? If nothing else the frequent ER visits over what are likely not true emergencies/emergent issues is painful to see. I just imagine this client going from provider to provider and maybe moving on when someone starts to 'catch on' but then again maybe I'm just pre-judging too harshly. Regardless most people aren't going to have the time/resources to go on such a deep dive as I/we (seeing this with another psychologist due to the complexity; frankly I've already spent way too much time on this one) and I'm concerned that consequently some other providers might not think to consider whether there's a more comprehensive overlay here to be addressed beyond whatever the presenting physical / somatic complaint is.. to give the benefit of the doubt to this client I'm hypothesizing maybe hyperfocus on health, somatic sx may be related to trauma, maybe even ASD- doesn't seem likely, but I'm always willing to be surprised.... and should be better addressed by good therapy (which is supposedly happening, but not sure if it is or of the quality). So.... WWYD in addition to the above? And is the CNT assessment worth anything?