Researching AVM resection

[jh38501]

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Greetings, all. Please forgive me if this is not an appropriate forum to ask this.

I have an infant daughter, three months old, who had a bleed in the first two days, most likely from an AVM. We are weighing differing opinions as far as treatment. We think there is a likelihood of a second AVM, and would like to pursue an angiogram. This would allow us to embolize it for stability, and move her to surgery for resection.

My question is how to go about researching such a specific procedure. What resources are available to find out who is the best person to resect an AVM in an infant? Are there databases of statistics, to find out who treats AVMs in infants, specifically with angiogram and likely resection?

Medicine is not my field, so I just don't know where to begin. My insurance company carries a rating search engine, but the most specific is pediatric craniotomy.

I would really appreciate any help. The sooner I can get any information, the sooner we can pursue an appointment. It seems to me that time is critical, since she has a history of a bleed already.

Thanks.

 

[latinfridley]

Greetings, all. Please forgive me if this is not an appropriate forum to ask this.

I have an infant daughter, three months old, who had a bleed in the first two days, most likely from an AVM. We are weighing differing opinions as far as treatment. We think there is a likelihood of a second AVM, and would like to pursue an angiogram. This would allow us to embolize it for stability, and move her to surgery for resection.

My question is how to go about researching such a specific procedure. What resources are available to find out who is the best person to resect an AVM in an infant? Are there databases of statistics, to find out who treats AVMs in infants, specifically with angiogram and likely resection?

Medicine is not my field, so I just don't know where to begin. My insurance company carries a rating search engine, but the most specific is pediatric craniotomy.

I would really appreciate any help. The sooner I can get any information, the sooner we can pursue an appointment. It seems to me that time is critical, since she has a history of a bleed already.

Thanks.

Please ask your child's pediatric neurosurgeon. This forum is not meant for giving medical advice. If you want more information on surgeons in your local area, look on the pediatric hospital neurosurgery dept website. They will usually say what neurosurgical areas they are able to address.

 

[jh38501]

Please let me clarify my question. I'm not asking for medical advice; the details were just background.

My question is: where does one find detailed statistics of how many procedures are performed at various hospitals, rates of mortality, rates of complications, all based on a procedure as specific as the one I referenced?

 

[yaah]

The SDN forums are not intended for medical advice or for patient use in evaluating hospitals, physicians, etc. These forums are for medical students, residents, attendings, and other medical staff who are discussing different fields. There are likely other forums for what you are looking for in addition to contacting hospitals and your own physician. Closing this thread.