I'm in an unusual position.
I suffered from a chronic health condition for six years. During this time, my doctors weren't able to diagnose me. I tried as hard as I could to research it as well, but I couldn't find anything that matched my symptoms.
After being told one diagnosis after another and not responding to any treatments, I eventually did come across an objective physical sign that pointed towards an illness. I told my doctor about it and he agreed. He sent me to a medical college where they ran objective tests on me and confirmed the diagnosis. The doctor there running the test said he only diagnoses about (EDIT: 20) of these cases a year.
So after six years I technically diagnosed myself.
They started me on the only known treatment that dated back all the way to the 1990's. (Not much research has been done on the condition) Unfortunately I had very severe side effects and not much benefits, so they stopped me on the medication and sent me back to the doctors in the area I live.
Unfortunately since my illness was so rare, none of the doctors where I live have ever heard of it, and so they tried various medications that kind of helped but not really.
I started researching my illness online and I found some promising case studies. Then I found a researcher at a medical college who was doing a lot of work on this condition and I found that he found a type of abnormality in this disease. Further another researcher recently confirmed his findings.
So I took the research to my doctor who then prescribed a medicine based on that research and within four weeks I began feeling better then I have in over 6 years. The medicine is the same medicine that the initial researcher is currently conducting an efficacy trial on. I wasn't able to participate in that clinical trial because he was very far from where I live and I didn't want to risk getting a placebo. I sent him my results and he was very enthusiastic about it.
Anyways, technically throughout all of this I basically did the basic steps of being a doctor. I diagnosed myself and I researched my illness and basically found the treatment as well. I look forward to the results of the efficacy trial being published because I honestly think it will help the others who have this condition.
But I'm wondering if it sounds arrogant or if it's not in good taste to write that I was the one who diagnosed myself and treated myself. Certainly I wish to write about this illness as it's had a profound impact on my life, but I don't want to sound like I'm a know-it-all because obviously none of what I did was original research I was just going off the work of others.
What would you do in such a situation?
I suffered from a chronic health condition for six years. During this time, my doctors weren't able to diagnose me. I tried as hard as I could to research it as well, but I couldn't find anything that matched my symptoms.
After being told one diagnosis after another and not responding to any treatments, I eventually did come across an objective physical sign that pointed towards an illness. I told my doctor about it and he agreed. He sent me to a medical college where they ran objective tests on me and confirmed the diagnosis. The doctor there running the test said he only diagnoses about (EDIT: 20) of these cases a year.
So after six years I technically diagnosed myself.
They started me on the only known treatment that dated back all the way to the 1990's. (Not much research has been done on the condition) Unfortunately I had very severe side effects and not much benefits, so they stopped me on the medication and sent me back to the doctors in the area I live.
Unfortunately since my illness was so rare, none of the doctors where I live have ever heard of it, and so they tried various medications that kind of helped but not really.
I started researching my illness online and I found some promising case studies. Then I found a researcher at a medical college who was doing a lot of work on this condition and I found that he found a type of abnormality in this disease. Further another researcher recently confirmed his findings.
So I took the research to my doctor who then prescribed a medicine based on that research and within four weeks I began feeling better then I have in over 6 years. The medicine is the same medicine that the initial researcher is currently conducting an efficacy trial on. I wasn't able to participate in that clinical trial because he was very far from where I live and I didn't want to risk getting a placebo. I sent him my results and he was very enthusiastic about it.
Anyways, technically throughout all of this I basically did the basic steps of being a doctor. I diagnosed myself and I researched my illness and basically found the treatment as well. I look forward to the results of the efficacy trial being published because I honestly think it will help the others who have this condition.
But I'm wondering if it sounds arrogant or if it's not in good taste to write that I was the one who diagnosed myself and treated myself. Certainly I wish to write about this illness as it's had a profound impact on my life, but I don't want to sound like I'm a know-it-all because obviously none of what I did was original research I was just going off the work of others.
What would you do in such a situation?
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