DiGeorge Syndrome and metirosine

[pisekar]

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16 yo patient with DiGeorge Syndome with hallucinations, had 2 failed AP trials. Would you treat this patient with metirosine if family is asking specifically for this medication?

 

[splik]

https://www.washingtonpost.com/health/teenage-psychosis-genetic-condition/2021/04/30/65133794-6be5-11eb-9ead-673168d5b874_story.html

maybe they read this? I think it would not be unreasonable to. The main issue is it likely wont be covered by insurance and its very expensive (between 10-40k per month).

 

[wolfvgang22]

Hypothetically, yes, with informed consent if the diagnosis is correct. You could check with the manufacturer to see if there is a patient assistance program.

 

[pisekar]

https://www.washingtonpost.com/health/teenage-psychosis-genetic-condition/2021/04/30/65133794-6be5-11eb-9ead-673168d5b874_story.html

maybe they read this? I think it would not be unreasonable to. The main issue is it likely wont be covered by insurance and its very expensive (between 10-40k per month).

Family reached out to a research center and learnt about the medication.

 

[Celexa]

Interesting. If the diagnosis was confirmed, I would seek out a conversation with someone with experience with the medication and then yes, I would probably be willing to write the prescription but it sounds difficult to obtain.

 

[deleted1100659]

I would suggest going off this Bausch Health Patient Assistance Program Website / Find out if you may be eligible to apply for the Bausch Health Patient Assistance Program. for patient assistance program you may be able to get it for free to them depending on income/insurance