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This is one for aProgDirector. If he doesn't see it here (he usually does), then PM him
I have had a chronic, hereditary gastrointestinal disease since childhood. The genetic form of the disease is extremely rare, misunderstood by many and no strides have been made in terms of medical therapy. For the majority of my adulthood I have been asymptomatic and high-functioning with self-limited illness occurring at most once a year. Furthermore, I do not have any outwardly signs of chronic GI illness, many physicians remark on how healthy I look despite my condition. I excelled during my high school, college and preliminary medical school years and never had any medically-related absences, missed schoolwork or exams. In fact, I didn't even disclose the information in my medical school applications as I felt my illness would never interfere with my education.
Unfortunately, during this past year I had an acute flare and subsequent life-threatening event which required a month-long hospitalization. I had to withdraw from the rotation I was on at the time. I returned to school on research fellowship before I officially had to declare medical leave. I'll return to clerkships during the next academic year. My advisor is aware of the situation and has been very supportive in the aftershock of my hospitalization.
My concern revolves around residency applications, which require that any period of extended absence from school be explained. What are my HIPPA rights in terms of disclosing the reason for my absence? I feel that I am stuck between a rock and a hard place, as simply stating I had a "medical illness" may mislead programs or raise concerns about a psychiatric issue which is not the case. However, if I do disclose the true extent of my illness, programs would be made aware that this is a chronic, at times severe, and unpredictable process that is not controlled by any medications or therapeutic interventions. Because the disease is so rare the prognosis in my situation is unknown and physicians have no way of predicting if an event like this will occur again or in the near future. Furthermore, the disease process in its genetic form is misunderstood by many and they have a difficult time accepting that someone of my age and functional capacity could have such a severe illness.
I feel that disclosing this illness despite my excellent academic record would seriously affect my chances of obtaining the residency program of my choice. I am an optimist but have a hard time believing evaluators will remain impartial during the application process. I feel I will be judged based on my illness and the fact that I had an extended absence from school, which could occur in residency training as well. What are my options, if any, in this situation? Thanks in advance.