Significant delays in ASD diagnosis and treatment

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Somewhat related question for those of you with infinitely more experience in this area, and about which I'm woefully underinformed (and before I do my own deep dive into the literature): is autistic burnout something generally recognized by research and professionals in the field, or is it akin to a more undecided/controversial topic (e.g., RSD in ADHD perhaps, or less robustly, the various Tik-Tok crazes)?
I have worked with high functioning autistic individuals for years and never heard the term autistic burnout. Brief glance at google makes me think that it just describes what happens to people who are struggling with life for an extended period of time for any reason. That being said, being overwhelmed by the demands of life is what brings high functioning individuals with autism into treatment in the first place. If you don't have intellectual and language impairment, there really isn't that much treatment for the "autism". My focus of treatment is to help the patient understand who they are and how to function well in society so that they don't get "autistic burnout" again. I think I am getting label burnout.

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I have seen a dearth of this testing esp as many of these kids are nonverbal and minimally verbal which makes them a more challenging population to treat. Hard enough to find people to test and treat minors, and this is a more difficult population.
 
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I have seen a dearth of this testing esp as many of these kids are nonverbal and minimally verbal which makes them a more challenging population to treat. Hard enough to find people to test and treat minors, and this is a more difficult population.
It's really really hard to differentiate if the kid is nonverbal/minimally verbal due to autism or due to intellectual disability (criterion E) as there is substantial overlap regarding RRB for the two populations. I was really hoping for more guidance from the dsm-5-tr. I think psychologists aren't doing a good enough job telling parents about that.
 
It's really really hard to differentiate if the kid is nonverbal/minimally verbal due to autism or due to intellectual disability (criterion E) as there is substantial overlap regarding RRB for the two populations. I was really hoping for more guidance from the dsm-5-tr. I think psychologists aren't doing a good enough job telling parents about that.
Alot of places I see want the full testing. They won't take the diagnosis without it as there has been too much over diagnosis and as you said there needs to be clear differentiation
 
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It's really really hard to differentiate if the kid is nonverbal/minimally verbal due to autism or due to intellectual disability (criterion E) as there is substantial overlap regarding RRB for the two populations. I was really hoping for more guidance from the dsm-5-tr. I think psychologists aren't doing a good enough job telling parents about that.
Yes it is difficult to differentiate since we don’t really know what autism is and it appears as though there are a wide variety of ways to get the cluster of symptoms we refer to as autism and we don’t even know what those caual pathways are. Also, verbal abilities are a big component of intellectual abilities so the overlap makes sense and what came first social delicit that leads to communication deficit or vice versa. That is just one simple example of they interact and cause each other. Start factoring in early childhood neglect or other developmental insults or the wide variety of genetic disorders that have “cognitive effects” and it is clear that we are doing the equivalent of diagnosing diseases with only a thermometer and patient report. I used to think the DSM wasn’t too bad and I thought the experienced clinicians teaching me were just grumpy old folks, but with clinical experience, the flaws in our diagnostic system are glaring and it permeates every aspect of our field.

Back to the thread at hand. I also think that the field doesn’t support or expect the level of expertise and training that psychologists like ClinicalABA brings to the table and having them in the key leadership roles. I think that clinical leadership is something that psychologists can often excel at and that we should teach and market that a bit more.
 
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Yes it is difficult to differentiate since we don’t really know what autism is and it appears as though there are a wide variety of ways to get the cluster of symptoms we refer to as autism and we don’t even know what those caual pathways are. Also, verbal abilities are a big component of intellectual abilities so the overlap makes sense and what came first social delicit that leads to communication deficit or vice versa. That is just one simple example of they interact and cause each other. Start factoring in early childhood neglect or other developmental insults or the wide variety of genetic disorders that have “cognitive effects” and it is clear that we are doing the equivalent of diagnosing diseases with only a thermometer and patient report. I used to think the DSM wasn’t too bad and I thought the experienced clinicians teaching me were just grumpy old folks, but with clinical experience, the flaws in our diagnostic system are glaring and it permeates every aspect of our field.

Back to the thread at hand. I also think that the field doesn’t support or expect the level of expertise and training that psychologists like ClinicalABA brings to the table and having them in the key leadership roles. I think that clinical leadership is something that psychologists can often excel at and that we should teach and market that a bit more.
Sigh. I had a bit of an issue at work regarding autism. Upper management is seeing dollar signs by designating our facility an “autism center of excellence” because part of that is a higher insurance rate. They did not include myself or any of the psychologists or any of the other therapies in this discussion and I found out via rumor. This is a common issue from the person who runs these types of initiatives at my clinic. We’ve been bleeding providers and this is just one example. This would open up the flood gates and we wouldn’t be able to see our chronic illness kids, our primary demographic. At least our new directors are responsive to this feedback. We really need to build an infrastructure and get bcbas, sensory gyms, people passionate about working with autism, etc. before jumping into the fray. Right now we seriously lack capacity.
 
Sigh. I had a bit of an issue at work regarding autism. Upper management is seeing dollar signs by designating our facility an “autism center of excellence” because part of that is a higher insurance rate. They did not include myself or any of the psychologists or any of the other therapies in this discussion and I found out via rumor. This is a common issue from the person who runs these types of initiatives at my clinic. We’ve been bleeding providers and this is just one example. This would open up the flood gates and we wouldn’t be able to see our chronic illness kids, our primary demographic. At least our new directors are responsive to this feedback. We really need to build an infrastructure and get bcbas, sensory gyms, people passionate about working with autism, etc. before jumping into the fray. Right now we seriously lack capacity.
Yep, my point exactly. Why are there so seldom psychologists as part of the upper management and why is it ok for them to make decisions that impact patient care without is being part of that process? Doesn’t happen that way in medicine nearly as much although more and more they are trying to get the docs out of the way as much as possible. We have the skill set to design and manage effective programs.
 
Back to the thread at hand. I also think that the field doesn’t support or expect the level of expertise and training that psychologists like ClinicalABA brings to the table and having them in the key leadership roles. I think that clinical leadership is something that psychologists can often excel at and that we should teach and market that a bit more.
You give me too much credit (but I'll take it). It's relatively easy to get good at something when it is all you do, but I am still mindful of "drift" and make sure to regularly review my work with colleagues, as well as question my regular referral sources (generally early intervention providers who i'm fortunate to have present at during the assessments) as to the how they feel I'm doing. Oh yeah- and I stay up on the literature, which is made easier to do by my secondary gig as an adjunct faculty.

As to being in a "key leadership" role, I've worked for places where having psychologists in control is a great things, and others where it did not work out so well. To some extent- obviously- it depends on the individuals. My current agency is has psychologists in all key senior leadership roles (including the owner). The missions is of the agency as a whole and of my small part of it are very clear, and we are expected to deliver mission focused services in a way that also keeps the lights on. If we do that, we have a lot of autonomy and control over what we do (and are reinforced for doing so). It works very well for me.

I've came from a primarily administrative/senior leadership background (my last job was actually primarily admin as a director of operations for an agency, and previously I've directed private special education schools). I'm VERY happy not to be doing that kind of thing anymore. It's a lot of really difficlut decision making, and you can't expect to make everyone happy (but you should still try to maximize the happiness). My current job is my first pure clinical position since practica. I'm very cautious about offering administrative/bigger policy decisions unless asked, as I'm aware that the people higher up usually have access to a lot more information than I do (and I trust them to do a good job and ask me for my opinion if they want it.

I've been thinking more about the original topic of this thread. Over the past few years I've had several non-psychologist colleagues (e.g., direct care ABA providers, early intervention developmental specialists) talk to me about pursuing graduate training so that they can "do what I do." So far they have all ended up going into a masters level graduate program (either ABA or Speech Therapy). The primary reason is that they can do so without having to uproot their lives and move accross country. The secondary reason is, realistically, they would not be competitive for a funded program and I advise them against the somewhat local PsyD program and it's exhorbitant cost. Even if they did start the Ph.D. process now, it'd be YEARS before they could help address the current problem. The only solution is really to attract already credentialled psychologist to this area of practice.

It's kind of a shame- these are young people who are motivated to adress this problem of access to diagnosis, have a proclivity for working with this population, and seem to be-in most cases- reasonably intelligent. I do think that I am not a great example for them of what a clinical psychologist is trained to do, as they only see me doing the exact same thing every time (which is a VERY small portion of what I'm actually trained, qualified, and credentialled to do). I don't like the idea of watering down the training (i.e, masters level ASD diagnosticiean) to just focus on ASD diagnosis, as this would also "water down" remibursement rates. However, we are kind of at the state of a public health emergency and the needs of these children and families outweighs the needs of me and the one or two other psychologist in the four-county-area to make a better living.
 
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You give me too much credit (but I'll take it). It's relatively easy to get good at something when it is all you do, but I am still mindful of "drift" and make sure to regularly review my work with colleagues, as well as question my regular referral sources (generally early intervention providers who i'm fortunate to have present at during the assessments) as to the how they feel I'm doing. Oh yeah- and I stay up on the literature, which is made easier to do by my secondary gig as an adjunct faculty.

As to being in a "key leadership" role, I've worked for places where having psychologists in control is a great things, and others where it did not work out so well. To some extent- obviously- it depends on the individuals. My current agency is has psychologists in all key senior leadership roles (including the owner). The missions is of the agency as a whole and of my small part of it are very clear, and we are expected to deliver mission focused services in a way that also keeps the lights on. If we do that, we have a lot of autonomy and control over what we do (and are reinforced for doing so). It works very well for me.

I've came from a primarily administrative/senior leadership background (my last job was actually primarily admin as a director of operations for an agency, and previously I've directed private special education schools). I'm VERY happy not to be doing that kind of thing anymore. It's a lot of really difficlut decision making, and you can't expect to make everyone happy (but you should still try to maximize the happiness). My current job is my first pure clinical position since practica. I'm very cautious about offering administrative/bigger policy decisions unless asked, as I'm aware that the people higher up usually have access to a lot more information than I do (and I trust them to do a good job and ask me for my opinion if they want it.

I've been thinking more about the original topic of this thread. Over the past few years I've had several non-psychologist colleagues (e.g., direct care ABA providers, early intervention developmental specialists) talk to me about pursuing graduate training so that they can "do what I do." So far they have all ended up going into a masters level graduate program (either ABA or Speech Therapy). The primary reason is that they can do so without having to uproot their lives and move accross country. The secondary reason is, realistically, they would not be competitive for a funded program and I advise them against the somewhat local PsyD program and it's exhorbitant cost. Even if they did start the Ph.D. process now, it'd be YEARS before they could help address the current problem. The only solution is really to attract already credentialled psychologist to this area of practice.

It's kind of a shame- these are young people who are motivated to adress this problem of access to diagnosis, have a proclivity for working with this population, and seem to be-in most cases- reasonably intelligent. I do think that I am not a great example for them of what a clinical psychologist is trained to do, as they only see me doing the exact same thing every time (which is a VERY small portion of what I'm actually trained, qualified, and credentialled to do). I don't like the idea of watering down the training (i.e, masters level ASD diagnosticiean) to just focus on ASD diagnosis, as this would also "water down" remibursement rates. However, we are kind of at the state of a public health emergency and the needs of these children and families outweighs the needs of me and the one or two other psychologist in the four-county-area to make a better living.
Appreciate your well-thought out reply. First thoughts are, not to you specifically as an autism specialist as this applies to all of us throughout the field, should we should focus on generating more psychologists or having a push for psychologists to oversee other clinicians or technicians. My state has a practice extender credentialing process. Looks a little cumbersome from my review of it and it is much easier for an individuals to get a LPC license and work independently. We don’t seem to be very practical minded in this field. I just look at what it would take for me to get RxP and it would be way more costly both in time and money than what the NP student at my office is doing. It is essential that we have very high standards, that is key to our success, but I also don’t think we should make them obstacles that shoot ourselves in the foot.
 
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