- Joined
- Mar 16, 2019
- Messages
- 64
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- 98
Treatment Done as of 3/10/2023!!!!
Thank you all for reading and those who have reached out and shared their stories. Onward to finish the semester and move onto clinicals <3
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Hello I'm writing this in hope that who ever may be in my situation be inspired to stay strong.
A bit of background for you, I'm a healthy 28 YO with no chronic health issues. So going into medical school I decided to use my home-state medicaid as my insurance which my school had approved (saved $3K/year). This medicaid only covers emergency and urgent care in the state of my medical school. Okay... so given the fact that I was a healthy 28 YO with no issues that all changed September of 2022.
I noticed a mass in my right submandibular area post COVID vaccine maybe about 2 weeks later when I went back home for winter break 2021. No other symptoms, just a mobile mass that felt rubbery which I thought nothing about. For the rest of first year I was perfectly fine until we learned about lymphoma's and salivary gland tumors. Naturally I thought about that mass for a bit, but just kept on my daily life as it never changed or caused any issues.
Come 2 months into 2nd year September 2022 I noticed it grew a bit and was more noticeable. I was slightly panicked but that's the only thing that changed. I convinced myself it was a pleomorphic adenoma of the submandibular gland. "Well-circumscribed, non-tender, mobile" some defining features which make it "benign". Though as the days progressed in September it became more apparent on my mind and I decided to message my PCP back home. She said to do an ultrasound which I unfortunately had to do through the ED because of insurance.... Yeah I felt ashamed because I was an EMT before and I felt like I was wasting resources, but what can I do....
The US came back as a hypoechoic mass 2cm and was actually a lymph node. I was in denial after seeing "lymph node" as it's a chronic lymphadenopathy which despite the "benign features" usually points towards malignancy. So throughout the first semester of second year I was going back and forth flying between my home-state and where medical school is to get a FNA (fine needle biopsy) which was inconclusive, referred to oncology who then referred me to ENT for excisional biopsy and the whole time span from first ultrasound to excision was Sept. 2022-Dec. 2022. Mainly because of insurance with pre-approval and specialist availability.
A week before the start of second year it came back in bold: DIAGNOSIS: CLASSICAL HODGKIN'S LYMPHOMA. I was having a lovely brunch with my wife and once I saw it, I immediately dropped my phone and questioned all my life's efforts to get into medical school and so much more. I felt like I became a burden to my wife, my family, and friends. The oncologist back home called and confirmed the sub-type was lymphocyte rich, which i'm assuming you all know is the best one of the best ones to have of this treatable cancer. He said he expects me to do 3-4 cycles (3-4 months) of chemotherapy. By that time I already decided to be treated up where my medical school is thanks to having a new insurance.
It was the most grueling decision I had to make... Stay at home where I can easily be taken care of, be comfortable, BUT have to waste my efforts of completing 1/2 of 2nd year only to repeat the WHOLE second year again regardless of just taking off the Spring semester for MLOA. OR work with the school admin and push through 3-4 months of chemotherapy (given the new oncologist agrees) while in school.
Fast forward 2 weeks when I'm in school and have just met my new oncologist. He said my pathology slides will be double checked by their pathologists to confirm the diagnosis. Thankfully he seemed to have much more experience compared to my previous oncologist with this disease and said given that it was only in 1 lymph node I would need 2 cycles of chemotherapy plus 10 days of radiation. I was actually really happy hearing that. But he mentioned that if it's the "nodular-sclerosis" sub-type that the treatment plan will change and he said it's a 2% chance that the diagnosis with change.
About 1 week later he calls me and opens up with "I have great news" I dropped my anki and listened anxiously. "It's actually nodular-sclerosing which means we can forgo chemotherapy and just do low dose radiation therapy." Now, that was spectacular news! Yes I still have "cancer" but I don't have to suffer through the effects of chemotherapy. And that's where I am today, going for my first radiology consult, to battle this illness, and to finish up second year.
I completely understand the individuals who have to receive such depressing news and on top of added stress of daily life. But I will say that I have such a great support system, my family was going to come up and stay with me through treatment. My closest medical school friends were all going to distribute duties driving me to and from treatment. I am very fortunate with their support, my families support, and the administration that has worked with me to make school doable. I decided to chance school with chemotherapy because if I had to take a MLOA it would've been the same either way. But I'm glad I didn't just quit and stay home and decided to at least try to see if I could manage side-effects with school because look at how my treatment changed.
I know some people won't be as fortunate to have a positive change in diagnosis but a couple things I got out of the stress of going through this.
1) Always ask for a second opinion on your diagnosis. My first pathology was signed off by 1 pathologist and the second time around it was signed off by 2 pathologists. I can't blame the first pathologist because this disease is difficult to diagnose in the first place, even more so properly diagnosing the sub-types is a pain.
2) Rely on friends and family or at least find a strong support system to help you make difficult decisions and deal with your emotions. Talk to a professional therapist if you really need, mental health is significantly important no matter what the circumstance.
3) Don't play the victim card, it's easy to feel bad for yourself, to give up on life and to have people take pity on you. Sure it's fine for maybe about 24 hours but you need to stay strong for yourself. Don't waste your energy on feeling bad about your situation. Take it day by day and adjust your life into a new normal. Put your energy into where it NEEDS to be.
I just want to add that, I feel like I don't fall under an individual with "cancer" even though I am diagnosed with a cancer. Mainly because of my fortunate situation (hopefully it stays that way), and this specific type has a cure rate of >90%. I don't want to feel like I am taking anything away from the people that have something to a greater degree, but just wanted to share my experience as I really searched the internet to help me make my decisions, which I didn't find much honestly except a story about a med student who was in my situation with a more aggressive WBC cancer.
Thank you for reading and I hope that even though you may or may not have a similar situation that you can take some lessons I learned from this experience and use it to help you in some way.
Thanks be to God for getting me through this, without him I would be in despair and had I not relied on him my diagnosis and treatment would have been more severe.
Thank you all for reading and those who have reached out and shared their stories. Onward to finish the semester and move onto clinicals <3
-------------------
Hello I'm writing this in hope that who ever may be in my situation be inspired to stay strong.
A bit of background for you, I'm a healthy 28 YO with no chronic health issues. So going into medical school I decided to use my home-state medicaid as my insurance which my school had approved (saved $3K/year). This medicaid only covers emergency and urgent care in the state of my medical school. Okay... so given the fact that I was a healthy 28 YO with no issues that all changed September of 2022.
I noticed a mass in my right submandibular area post COVID vaccine maybe about 2 weeks later when I went back home for winter break 2021. No other symptoms, just a mobile mass that felt rubbery which I thought nothing about. For the rest of first year I was perfectly fine until we learned about lymphoma's and salivary gland tumors. Naturally I thought about that mass for a bit, but just kept on my daily life as it never changed or caused any issues.
Come 2 months into 2nd year September 2022 I noticed it grew a bit and was more noticeable. I was slightly panicked but that's the only thing that changed. I convinced myself it was a pleomorphic adenoma of the submandibular gland. "Well-circumscribed, non-tender, mobile" some defining features which make it "benign". Though as the days progressed in September it became more apparent on my mind and I decided to message my PCP back home. She said to do an ultrasound which I unfortunately had to do through the ED because of insurance.... Yeah I felt ashamed because I was an EMT before and I felt like I was wasting resources, but what can I do....
The US came back as a hypoechoic mass 2cm and was actually a lymph node. I was in denial after seeing "lymph node" as it's a chronic lymphadenopathy which despite the "benign features" usually points towards malignancy. So throughout the first semester of second year I was going back and forth flying between my home-state and where medical school is to get a FNA (fine needle biopsy) which was inconclusive, referred to oncology who then referred me to ENT for excisional biopsy and the whole time span from first ultrasound to excision was Sept. 2022-Dec. 2022. Mainly because of insurance with pre-approval and specialist availability.
A week before the start of second year it came back in bold: DIAGNOSIS: CLASSICAL HODGKIN'S LYMPHOMA. I was having a lovely brunch with my wife and once I saw it, I immediately dropped my phone and questioned all my life's efforts to get into medical school and so much more. I felt like I became a burden to my wife, my family, and friends. The oncologist back home called and confirmed the sub-type was lymphocyte rich, which i'm assuming you all know is the best one of the best ones to have of this treatable cancer. He said he expects me to do 3-4 cycles (3-4 months) of chemotherapy. By that time I already decided to be treated up where my medical school is thanks to having a new insurance.
It was the most grueling decision I had to make... Stay at home where I can easily be taken care of, be comfortable, BUT have to waste my efforts of completing 1/2 of 2nd year only to repeat the WHOLE second year again regardless of just taking off the Spring semester for MLOA. OR work with the school admin and push through 3-4 months of chemotherapy (given the new oncologist agrees) while in school.
Fast forward 2 weeks when I'm in school and have just met my new oncologist. He said my pathology slides will be double checked by their pathologists to confirm the diagnosis. Thankfully he seemed to have much more experience compared to my previous oncologist with this disease and said given that it was only in 1 lymph node I would need 2 cycles of chemotherapy plus 10 days of radiation. I was actually really happy hearing that. But he mentioned that if it's the "nodular-sclerosis" sub-type that the treatment plan will change and he said it's a 2% chance that the diagnosis with change.
About 1 week later he calls me and opens up with "I have great news" I dropped my anki and listened anxiously. "It's actually nodular-sclerosing which means we can forgo chemotherapy and just do low dose radiation therapy." Now, that was spectacular news! Yes I still have "cancer" but I don't have to suffer through the effects of chemotherapy. And that's where I am today, going for my first radiology consult, to battle this illness, and to finish up second year.
I completely understand the individuals who have to receive such depressing news and on top of added stress of daily life. But I will say that I have such a great support system, my family was going to come up and stay with me through treatment. My closest medical school friends were all going to distribute duties driving me to and from treatment. I am very fortunate with their support, my families support, and the administration that has worked with me to make school doable. I decided to chance school with chemotherapy because if I had to take a MLOA it would've been the same either way. But I'm glad I didn't just quit and stay home and decided to at least try to see if I could manage side-effects with school because look at how my treatment changed.
I know some people won't be as fortunate to have a positive change in diagnosis but a couple things I got out of the stress of going through this.
1) Always ask for a second opinion on your diagnosis. My first pathology was signed off by 1 pathologist and the second time around it was signed off by 2 pathologists. I can't blame the first pathologist because this disease is difficult to diagnose in the first place, even more so properly diagnosing the sub-types is a pain.
2) Rely on friends and family or at least find a strong support system to help you make difficult decisions and deal with your emotions. Talk to a professional therapist if you really need, mental health is significantly important no matter what the circumstance.
3) Don't play the victim card, it's easy to feel bad for yourself, to give up on life and to have people take pity on you. Sure it's fine for maybe about 24 hours but you need to stay strong for yourself. Don't waste your energy on feeling bad about your situation. Take it day by day and adjust your life into a new normal. Put your energy into where it NEEDS to be.
I just want to add that, I feel like I don't fall under an individual with "cancer" even though I am diagnosed with a cancer. Mainly because of my fortunate situation (hopefully it stays that way), and this specific type has a cure rate of >90%. I don't want to feel like I am taking anything away from the people that have something to a greater degree, but just wanted to share my experience as I really searched the internet to help me make my decisions, which I didn't find much honestly except a story about a med student who was in my situation with a more aggressive WBC cancer.
Thank you for reading and I hope that even though you may or may not have a similar situation that you can take some lessons I learned from this experience and use it to help you in some way.
Thanks be to God for getting me through this, without him I would be in despair and had I not relied on him my diagnosis and treatment would have been more severe.
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