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- Jan 14, 2013
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Threw a positive for campylobacter while in the hospital (been negative 3x for it during this whole thing) and so now apparently we're wanting to throw out the entire 2 months' worth of diagnostics that preceded it.
Even though it doesn't fit the clinical picture very well at all, and even though a week on azithromycin has done exactly 0 to alter my symptoms other than making a fever go away. I don't doubt the campy positive (although with my diet these days, I have no idea where I would have picked it up), but I REALLY doubt that it's been responsible for 2 months of illness while managing to fly under the radar in previous rounds of testing.
I would LOVE for this to be something as simple as that, but I really feel like it's an acute on chronic process and I don't love that we're tossing the chronic out just because campy is a fast and easy diagnosis. I spent the day today compiling all of my lab values since November, coding charts of them, and making a calendar of every appointment, diagnostic done & result, therapy tried (there wasn't much for this), etc. because I couldn't get an appointment with GI until I was 6 weeks into being sick and by the time I had my first appointment, my symptoms were somewhat managed with prednisone (after a week of being on that).
I'm grateful that I have an education that allows me to advocate for myself, but this whole thing is so freaking frustrating.
Even though it doesn't fit the clinical picture very well at all, and even though a week on azithromycin has done exactly 0 to alter my symptoms other than making a fever go away. I don't doubt the campy positive (although with my diet these days, I have no idea where I would have picked it up), but I REALLY doubt that it's been responsible for 2 months of illness while managing to fly under the radar in previous rounds of testing.
I would LOVE for this to be something as simple as that, but I really feel like it's an acute on chronic process and I don't love that we're tossing the chronic out just because campy is a fast and easy diagnosis. I spent the day today compiling all of my lab values since November, coding charts of them, and making a calendar of every appointment, diagnostic done & result, therapy tried (there wasn't much for this), etc. because I couldn't get an appointment with GI until I was 6 weeks into being sick and by the time I had my first appointment, my symptoms were somewhat managed with prednisone (after a week of being on that).
I'm grateful that I have an education that allows me to advocate for myself, but this whole thing is so freaking frustrating.
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